Walk Day: March for Babies 2016 Recap

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Izzy’s big sis sporting her fly “Proof that miracles happen” cape!

 

Sunday, April 24, 2016—the day of the March of Dimes March for Babies—was a perfect day. The sun was shining bright and the temperature was probably somewhere in the 60s-70s in the Chi—warm, but breezy. As we walked on the lakefront downtown, the sun sparkled like diamonds on Lake Michigan and the sail boats gently swayed in the wind. We walked in solidarity with countless other families who have either experienced the anxiety of taking care of a premature infant or families, like us, who were there celebrating the life of an angel baby that is no longer on earth. My husband and I felt part of a larger community of parents who have been through the fire and have come out not only alive, but refined. We were grateful to know that we weren’t alone.

Everything was perfect, not solely because the weather was nice or because we had a great group of close family and friends supporting us or even because we were able to do something to help others in honor of our son, Izzy. (Our team, Fight4Israel, raised $1,943 for babies!) It was perfect because we chose to focus on the things that were going well instead of the things that weren’t. We chose to be grateful for the people who came out to walk with us instead of the people who didn’t. It was perfect because it was symbolic of us choosing life instead of choosing to spiritually die because our hearts were broken from losing Izzy.

 

Walk Pic with blog logo4

The majority of the Fight4Israel team. Thank God for them!

 

It was just one day. As long as we’re on this side of heaven without Izzy, we know that there will be both sunny, breezy days when we’re walking in hope and cloudy, dismal days when we have to look hard for meaning out of everything that has happened. Regardless, we will look back on Sunday, April 24, 2016 with joy and gratitude because it was at least one day of victory over grief!

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Cousins! One walked for her little bro, a preemie in heaven. The other walked because she was a preemie and is thriving!

 

 

 

Izzy Taught Me

It’s 2 days until my husband and I will participate in the March of Dimes March for Babies in honor of the life and death of our son Izzy who passed away on January 25, 2016 due to bilateral renal agenesis (BRA), a fatal birth defect when a baby lacks kidneys. I’m pushing myself to write and post on the blog each day until the walk—some days a little and maybe some days a lot—in hopes of shedding light on issues like miscarriage, stillbirth, and infant loss so that other women who go through these types of things know that they’re not alone. Please share this post generously to spread awareness!

Birth Defects Ribbon

Izzy taught me to…

Be grateful.

Accept people as they are.

Live for a cause bigger than myself.

Invest in my personal growth.

Be open.

Be honest.

Value relationships.

Treasure time.

Be authentic.

Forgive easily.

Treat people better than they treat me.

Focus on the positive.

Live in the present.

Work towards building legacy.

Learn always.

Take responsibility for my health and my life.

Build up myself and others.

Let it go.

Create a vision for my life without limits.

Seek growth, not perfection.

 

My family and I would love for you to donate to our March for Babies campaign! Any amount no matter how small may help other families of premature infants. Click here and know that we’re so thankful for you!

Destiny

It’s 4 days until my husband and I will participate in the March of Dimes March for Babies in honor of the life and death of our son Izzy who passed away on January 25, 2016 due to bilateral renal agenesis, a fatal birth defect when a baby lacks kidneys. I’m pushing myself to write and post on the blog each day until the walk—some days a little and maybe some days a lot—in hopes of shedding light on issues like miscarriage, stillbirth, and infant loss so that other women who go through these types of things know that they’re not alone. Please share this post generously to spread awareness!

Destiny paragraph jakes

Currently reading, Destiny: Step into Your Purpose by T.D. Jakes to try to make sense out of my past, my present, and my hope for the future. I’ve never been into T. D. Jakes’ teachings and sermons as much as I have been during my current grief journey. Grateful for The Bishop.

My family and I would love for you to donate to our March for Babies campaign! Any amount no matter how small may help other families of premature infants. Click here and know that we’re so thankful for you!

Feelings and Actions

It’s 5 days until my husband and I will participate in the March of Dimes March for Babies in honor of the life and death of our son Izzy who passed away on January 25, 2016 due to bilateral renal agenesis, a fatal birth defect when a baby lacks kidneys. I’m pushing myself to write and post on the blog each day until the walk—some days a little and maybe some days a lot—in hopes of shedding light on issues like miscarriage, stillbirth, and infant loss so that other women who go through these types of things know that they’re not alone. Please share this post generously to spread awareness!

How you act quote td jakes

Feelings are important and must be acknowledged, but we all have those times when we know our feelings are contrary to what our head or our spirit tells us to do. Pretty much every time I write a post that’s deeply personal to me there’s a moment of hesitation before clicking “publish” or “share.” My feelings often tell me to keep my story to myself. It’s too precious to me. It’s too sacred to share with others that may only see it as entertainment or read it as something to gossip and snicker about. Yet, my spirit tells me that one of the reasons I went through the things that I’ve went through is to share my experience and what I’ve learned. Plus, there’s a boldness I feel now that I didn’t have before. Since I’ve been completely broken in spirit, there’s no where to go but up. People’s opinions won’t make or break me now because they won’t give me back what I’ve lost. Opinions are irrelevant and I definitely can’t cash them in at the bank.

It’s common for many women who’ve experienced miscarriage, stillbirth, or infant loss to feel like they are to blame in some way, like they’re inadequate, or like they have failed. There is nothing wrong with you, but everything right with you. Your heart has been broken, but it’s still beating and it’s stronger than its ever been. My encouragement to you is to share your story if you feel led to do so by some force that you can’t name. You may never feel like you are ready, but more than likely you will find greater peace if you release any shame you feel about your situation. Bad things happen to everyone and there is nothing you’ve done to deserve losing your baby. Choose to act on faith rather than not acting because of how you feel because you just might help someone else mend their heart as well.

My family and I would love for you to donate to our March for Babies campaign! Any amount no matter how small may help other families of premature infants. Click here and know that we’re so thankful for you!

No Sleeep

It’s 6 days until my husband and I will participate in the March of Dimes March for Babies in honor of the life and death of our son Izzy who passed away on January 25, 2016 due to bilateral renal agenesis, a fatal birth defect when a baby lacks kidneys. I’m pushing myself to write and post on the blog each day until the walk—some days a little and maybe some days a lot—in hopes of shedding light on issues like miscarriage, stillbirth, and infant loss so that other women who go through these types of things know that they’re not alone. Please share this post generously to spread awareness!

Unfortunately, I’m not about to write about the good kind of “No Sleeep” that Janet Jackson sings about in her song. My “No Sleeep” started the night that my newborn son died. The night that Izzy passed, I cried myself to sleep and slept for about 3 or 4 hours before I woke up again to cry and stare out of my hospital window. I could see Lake Michigan and I remember thinking how strange it was that the sun was coming up and the world was still going after everything that just happened. It’s been hard to sleep ever since that night.

Once I came home from the hospital, I was only able to sleep for a few hours at a time before waking up and staring into the darkness of my bedroom. Sometimes I could let out a good cry and go back to sleep, but other times I would just lay in bed with my eyes closed and my mind racing. A week from today will be 3 months since he was born and passed away and I still find myself feeling like a zombie most days because I’m not getting nearly as much sleep as I need to feel my best.

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Me, sleep-studying in college during my senior year

There are some people, like my husband for example, who are still able to thrive with very little sleep. He’s so used to being tired that for him it’s almost a nonissue. But I on the other hand have always been a person that needed at least 7-8 hours in order to have enough energy to even say “Good Morning” to someone without having an attitude. I’ve always not only needed sleep to feel ready to handle the day, but I’ve always just loved sleep. It was one of my favorite things to do. It was also a refuge for me when I was going through hard or stressful situations. I took so many naps in college after my Dad died from cancer that I wish napping was a major because I would’ve graduated summa cum laude. But this time, I can’t sleep away my grief. There’s this anxious feeling in the pit of my stomach that keeps me up even when I’m on the brink of exhaustion.

 

Grief itself is exhausting. Of course, grief affects every person differently. However, for me and for many other people from what I’ve read/heard, grief can physically wear you out. The pain of loss can feel like a weight that you carry around 24/7 without any relief and it just makes you tired—weary really. One of the toughest things about this is it’s when I’m the most tired that the sadness and pain of grief seems the most overwhelming. It’s hard to stand under the weight of it all mentally, when I’m physically void of energy.

Through it all, I’m trusting in God that I will get through this and for those of you that may be having your own physical or mental struggles from grief, I’m praying the same for you.

My family and I would love for you to donate to our March for Babies campaign! Any amount no matter how small may help other families of premature infants. Click here and know that we’re so thankful for you!

Love

It’s 12 days until my husband and I will participate in the March of Dimes March for Babies in honor of the life and death of our son Izzy who passed away on January 25, 2016 due to bilateral renal agenesis, a fatal birth defect when a baby lacks kidneys. I’m pushing myself to write and post on the blog each day until the walk—some days a little and maybe some days a lot—in hopes of shedding light on issues like miscarriage, stillbirth, and infant loss so that other women who go through these types of things know that they’re not alone. Please share this post generously to spread awareness!

This past weekend was rough emotionally. The gray skies and cold rain here in Chicago mimicked how I felt inside. I questioned how Izzy could be taken from me so soon when I felt such an overwhelming love for him. Every parent of an angel wonders how it’s possible to have lost a child that you would gladly trade your own life for when there are so many parents in the world that have child after child that they don’t want. It’s a question that I’m sure has been asked since the world began.

After taking time to sit in my pain, I began to think of how my love for Izzy must be shallow in comparison to the love that our Father in heaven has for His children. I love Izzy not because of anything he did or didn’t do, but simply because of who he was—my son. To think that God loves me simply because of who I am and to think that His love is perfect and complete unlike human love is too much for my mind to handle. It’s a love that comforts us in a way that no one else can. It’s a love that strengthens us when we feel like we cannot go on. It’s a love that allows us to hurt so that we can become who we are meant to be. Thank God for that level of love.

My family and I would love for you to donate to our March for Babies campaign! Any amount no matter how small may help other families of premature infants. Click here and know that we’re so thankful for you!

About Suffering

It’s 15 days until my husband and I will participate in the March of Dimes March for Babies in honor of the life and death of our son Izzy who passed away on January 25, 2016 due to bilateral renal agenesis, a fatal birth defect when a baby lacks kidneys. I’m pushing myself to write and post on the blog each day until the walk—some days a little and maybe some days a lot—in hopes of shedding light on issues like miscarriage, stillbirth, and infant loss so that other women who go through these types of things know that they’re not alone. Please share this post generously to spread awareness!

Life is too short to suffer quote

suffer: to become worse because of being badly affected by something

As we’ve all heard many times before, the outcome of our lives is based on our reactions to what happens to us, not what actually happens.

My family and I would love for you to donate to our March for Babies campaign! Any amount no matter how small may help other families of premature infants. Click here and know that we’re so thankful for you!